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Provides information on a variety of pathological conditions whose occurrence is so rare that research regarding treatment has not been a priority, including information on what resources or services may be available, an online community, a newsletter and research papers.

Provides information on various health issues via printed materials, or speakers.

Provides various formats (online, print materials and speakers) for anyone wanting to know more information about specific diseases, prevention tips, and various health-related topics.

Provides speakers to promote health and wellness seminars and workshops, including disease-specific information through various sources, online, printed materials, etc.

Acts as a clearinghouse and referral service for information on rare diseases. Maintains a comprehensive rare disease database, which provides families with information on over 1,100 rare disorders. Its networking program links families with other families who are afflicted with similar disorders. Accumulates and disseminates information about orphan drugs and devices, making known their availability. Advocates the needs of people with rare disorders. Provides disease specific medical reports written in lay language. Also offers a Medication Assistance Program for specific drugs and a medical equipment exchange program. Publishes Orphan Disease Update and Resource Guide . Call for more information.

Acts as a clearinghouse and referral service for information on rare diseases. Maintains a comprehensive rare disease database, which provides families with information on over 1,100 rare disorders. Its networking program links families with other families who are afflicted with similar disorders. Accumulates and disseminates information about orphan drugs and devices, making known their availability. Advocates the needs of people with rare disorders. Provides disease specific medical reports written in lay language. Also offers a Medication Assistance Program for specific drugs and a medical equipment exchange program. Publishes Orphan Disease Update and Resource Guide . Call for more information.